First I'd like to apologise for the disappearing act since my last post. I'm sure you've already figured out that the news we received wasn't what we had hoped. The biopsy showed that my cancer had returned and in June 2014 I had surgery. I'm feeling better now and so many things have happened since my last post.
Where do I begin? I guess I'll just start with the big moments. I have been spending countless hours with Piper and we've been working a lot together. I can say hands down a vitamin supplement has truly helped which I think is due to her lack of vitamins in her daily diet due to food textures. To us she's made drastic improvements but, it will be a lifelong commitment.
The biggest changes... okay! 1) I'm happy to say Piper is starting to try and verbalize, she is still considered non-verbal because she is unable to make words. But, this is still HUGE progress!! I remember this phase when she was younger and what soon followed was communication, so I have hope we're heading back in to that direction. 2) We have her enrolled in Montessori! Can you believe it? This Montessori in Bethlehem where we live has been really amazing and agreed to give us a shot. I think its important for Piper to really start to be around other children. It's only part time, but the school, the teachers, and the children have been fantastic!! That is the part about this journey that makes it special, when you find people who truly want to help you instead of put you and your child in the "too hard" basket. We couldn't be happier and either could Piper. I can tell she is LOVING IT and learning so much from being around the other children! 3) One the BEST decisions we have made was placing her in to Equestrian Therapy with an amazing charity called "Riding for the Disabled" These have been huge things for us and have all helped contribute to the amazing success we are finding with Piper. I've placed the video below from her first assessment to see if it was something she would be able to participate in. I'll be honest, we didn't think she would be able to do it because she doesn't follow direction, or hold on, and was worried she'd have a tantrum and scare the horse since its a TOTALLY new environment with new people, new animals, new lighting, new new new new. But, to our total surprise...... well, I'll let you watch for yourself!!!
Erika & Dan Harvey
A blog about our journey through the spectrum with our daughter Piper. Enjoy and feel free to share with others.